It has been a fairly uneventful week, which is what we like! Eric was tired Tuesday morning and stayed home from school. We went to clinic on Wednesday and it was pretty straight forward, but Eric got overwhelmed early on and a bit cranky. He had 2 nurses because one was new to the clinic. He's actually a nurse we've seen in the ER a few times, and also on the inpatient side of T8. However, he has never worked in clinic so he had someone shadowing him. So they were in the room for awhile to do the access and bloodwork. As soon as they left, an ECG tech showed up, and as soon as she left Eric's Oncologist and Nurse Clinician showed up. Everyone of these people wanted to poke and prod Eric and he was done!
Having an ECG is not a regular event for a clinic visit, but everything else is. That was Eric's 4th ECG since he started this new med 2.5 weeks ago, so he's also done with ECG. I told him if they are going to make you do something so often, at least it's easy. For an ECG he can continue to lay on his hospital bed and watch his iPad. They just put some stickers on his chest and connect wires to them and the whole thing is done in about 2 minutes. Eric's Oncologist has ordered so many because this new med can cause long QT which is basically a longer gap between beats. It seems like all these meds can cause this and he has been monitored for it before. As of Friday, the ECG looked great, but Wednesday's did show "borderline" QT so we do need to keep a close eye on it. The dosing of this med is a bit different, so that Eric takes 1 tab for 5 days and then 2 tabs for 5 days and then repeats. This is because his dose is actually 1.5 tabs, but you can't cut them. This last ECG was after 5 days of 2 tabs, so Eric's Oncologist is hoping that after another 5 days of only 1 tab, the ECG will be normal again.
After all that poking and prodding, everyone left Eric alone. He got his platelet transfusion and his doctor reviewed the bloodwork with me. The liver inflammation is down again, though only a little this time, but the best news is: blasts are down to 0.7!!!! I mean zero would be great, but not 9 is also amazing. It seems like this new med is working 🤞🤞🤞 We don't know for how long, and while we have started steps toward transplant, it seems like we're going to get a little breather.
On Thursday, Eric went to school for a half day and was recognized at Baker's May Recognition Assembly for his positive attitude 💖
It is Friday morning and Eric and I are enjoying a nice slow morning. Tomorrow we are going to Granny's to celebrate the May birthdays and Sunday we are free!
Back to clinic Monday and Friday next week.
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