We were able to come home on Sunday afternoon. All morning Eric was saying when will the doctor be here, when. Then the doctor showed up and Eric said "Finally! When can we go home?" He was still in a fair bit of pain, but had a better night and was just so done with the hospital. A platelet transfusion was already in progress and the doctor let us go when it finished. We were so happy and relieved to be home. We were supposed to have a clinic visit on Tuesday for platelets, but I emailed the team on Monday to ask if we could cancel it since he had platelets on Sunday and they were happy to let us do that.
It felt like such a long, in a good way, week of freedom, from Sunday afternoon through Thursday. Joel was home for some of it too, having caught the cold that landed Eric in the hospital. Initially, Eric was in a lot of pain. The pain meds were helping, but not enough. He was even waking up in the middle of the night in pain. A Nurse Practitioner from the team that did the pain consult a few weeks ago called me to check in and was able to tweak the plan a little. That helped for Eric to sleep through the night. He spent the week working on his LEGO set on and off as the pain would allow and was so pleased to finish it.
Eric started to feel a bit better as the week went on. He is definitely still in pain, but not quite as agonizing as before. We went to clinic on Friday and I did get a wheelchair to make it easy and painless for him to get upstairs. He had bloodwork and a platelet transfusion. Unfortunately, the blast count was up a little on Friday, but his Oncologist says we won't make any changes from a one off. He would be more worried if it was a trend so he says we will see what the numbers look like on Wednesday.
Eric spent the weekend resting his legs. Though on Sunday we went out to Camp Goodtimes. We were invited to their training weekend to share our story and what Camp Goodtimes means to us. It was so wonderful to share with the volunteers how their selflessness positively affects our family. One the way out there, we saw a couple bears and on the way back a deer!
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