Monday, May 18, 2026

Week of May 10

Eric and I have caught a little cold. Luckily it's quite mild, especially for him. I had a nice and relaxing Mother's Day, while Chuck worked his butt off. Eric entertained me - and himself - by eating an apple like a goofball.


Eric had a platelet transfusion on Friday, so usually his clinic day this week would be Wednesday, however, since he started the new medication/treatment on Friday, the team wants to keep a close eye on him, so we had to go in on Monday. Since he didn't need platelets or his port accessed, we had to go to the blood lab first and then to clinic. Eric has been taking daily pain medication proactively because of the pain he was having the last couple of weeks. However, I forgot to give it to him Monday morning, after being away and out of the routine. He mentioned in the car that we'd forgotten but said he was fine. I asked him again when we got to the hospital and he still was fine. Blood lab went smoothly, though slowly, which is normal. In clinic, Eric saw his NP. She mentioned he was looking a lot better. His numbers were all good, including his blast count finally being down significantly. This could still be from the IV treatment finally working in his system, or from the new med or maybe both. We were only at the hospital a total of just under 2 hours and got home before lunch. It was nice to have the afternoon free. When it was time for Eric's afternoon meds, I asked him if he needed the pain med and he said "does it look like I need pain meds?" while dancing around the living room. My heart burst with joy. He said this is the best he's felt in weeks and it's definitely the best I've seen him in weeks, even months. Always the opportunist, I said if he was feeling so well, perhaps he should try a half day of school on Tuesday and he agreed. He was a bit nervous to go to school after being away for so long, but he made it the half day as planned. When I arrived at noon to pick him up, he had clearly had a very good morning and was grinning from ear to ear. 

Wednesday we went back to clinic for a scheduled platelet transfusion and also another check in to see how things are going with the new med. His blast count was down again and his liver inflammation still dropping. A good visit! Thursday Eric said he was too tired to go to school, but he's still feeling great. 

Way back when BC Ferries opened up their reservations, I booked a ferry to the Sunshine Coast and back for May long weekend, so that we had the option to go if we chose. A couple of weeks ago, I don't think we could have done it, but with Eric feeling better, everyone was up for a little vacay. The long weekend makes our clinic visits a bit challenging. We opted to go in on Friday, 3 days this week if you are counting. The idea was that Eric could get topped up with platelets before the long weekend and next week we can go back to our regular schedule, if all the numbers continue to look good. Clinic was pretty straightforward. Most of our team was away but we saw another doctor that we know well. Eric had an ECG to check in on his heart with the new med and it looks great. His blast count was up a tiny bit from Wednesday which I don't like, but I know Eric's Oncologist would say that it is not a statistically significant difference. His liver inflammation is down again. It has come down leaps and bounds this last week and is now close to the slightly angry that we've been tolerating for a year. Most importantly, Eric is still feeling great and is excited for a weekend on the Sunshine Coast. 

Our ferry wasn't until late, and visiting Granny's cabin is easy, so I was able to have a nap before packing. The family was excited to go, but I was exhausted. Between my mini cruise, 3 hospital days in one week and a cold, I was beat! However, I knew once we get to the cabin, it will be super relaxing. The ferry was uneventful and we got into the cabin just before dark. Granny wasn't available to join us this weekend, so it's just the 4 of us and the dog. The weather turned out to be beautiful on the Sunshine Coast over the long weekend, which I wasn't really expecting. We spent a lot of time relaxing, napping, playing family board games, poking around the beach, and we even toasted s'mores over a campfire on the beach. 


Back to reality (home) this (Monday) afternoon and back to clinic Wednesday. 

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Week of May 10

Eric and I have caught a little cold. Luckily it's quite mild, especially for him. I had a nice and relaxing Mother's Day, while Chu...