Eric had to go in twice this week after his platelet count was so low last Friday, but both days were planned in advance.
First, again thanks to Starlight Children's Foundation, we all went to Toys R'Us on Sunday morning for a private (only Starlight families, before the store opened) shopping experience. It was super fun and I really enjoyed comparing Joel's height to Geoffrey the Giraffe's height. Spoiler alert, the giraffe is taller.
Uncle Jon came to visit for the week and, among other things, we visited the Lights at Lafarge Lake, which are magical! Eric went to school everyday he was available this week, including for his class Christmas performance and Christmas party. He is still quite tired, but also still not too nauseous.
Tuesday Eric and I went to clinic and brought Uncle Jon along. Knowing that Eric's platelets had been less than 5 and that he'd had a platelet transfusion on Friday, we all took a guess at what his platelet count was going to be. I guessed 6, Jon guessed 7 and Eric guessed 8; he said he was being optimistic. I won!! They were 6! There is no real prize, so I've got to brag here ;) Eric had another platelet transfusion and we made it out at a reasonable time.
For Friday our appointment was 11am, but we all believed Eric would need blood and platelets so that's a bit of a late start. Our appointment was initially changed to 9am and then late on Thursday changed again to 8am. I guess clinic is a bit of a zoo today with the holidays coming up. We had to get an early start but traffic was a breeze! We actually ended up at clinic before they opened. Eric stayed accessed on Tuesday so didn't have a port access today and they were able to do his blood work right away. We got his hemoglobin back and it was 88. So it has dropped a little, but is falling slowly and not at a place where they would typically do a transfusion. We were waiting and waiting for the platelet count, which generally means someone has to look at it under a microscope, an indication that it is low. Eric's doctor came in and said he called the lab to check and was told that either the platelets were clumped or they were 22. He said you have to have platelets in order for them to clump, so either way, Eric didn't need a platelet transfusion. This is on the basis that we are no longer trying to make it until next Friday. Since the clinic is shaping up to be chaos on Friday after being closed Wednesday and Thursday, our nurse clinician suggested instead that we come in early next week and then try and make it a week from there, in order to avoid the Friday. All this to say: 1) we finished way earlier than expected today and got home a little after 11am, and 2) we are currently tentatively planning to be back in clinic Monday the 23rd and Monday the 30th and then a bone marrow biopsy Monday the 6th.
One more update from me before Christmas!
No comments:
Post a Comment