I wish I could say Weekly Check Up, but alas, we have to go back again this week.
Eric and I headed into clinic this morning and traffic was amazing! Our nurse was all ready to go with all the supplies for the port access which was quick and easy (Eric may not agree with the easy part.) Eric's hemoglobin is still falling, but still slowly, so he didn't need a red blood cell transfusion today. Unfortunately, his platelets were again "<5" so he needed a platelet transfusion today. It's only been 6 days since his last transfusion and with his platelet count so low today, the doctor was not comfortable letting him stay away for a week. The doctor said he was going to have us come back on Friday, but apparently there's no room in the clinic on Friday. Instead they've asked us to come in on Thursday, Boxing Day, to the inpatient ward, but just for bloodwork and a possible transfusion, not to stay overnight.
I counted today and Eric has had 31 platelet transfusions and 21 blood transfusions since his diagnosis. He's also had 14 bone marrow biopsies and spent 145 nights in hospital. Here's your holiday reminder to donate blood; children like Eric need your donations year round.
Thank you for reading, for caring for Eric and our family. We truly appreciate each and every person who assists us everyday in every little way. It might be a small gesture for you, but it means the world to us. Thank you for keeping us in your hopes/thoughts/prayers. Merry Christmas with love from the Wagner Family.
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