We've had a fairly uneventful week, which is never a bad thing when you're dealing with a medical condition. We had a nice relaxing long weekend. Eric had a make up swimming lesson to use so we decided to schedule it for the long weekend when Eric was feeling good. He got to go swimming on Sunday and Monday. Monday was the start of survival week so Eric swam lengths with pjs over top of his bathing suit, took the pjs off in the deep end and then learned about rescue. Joel went to a movie with friends; they were dropped off and on their own, which is a first for him.
Tuesday Eric actually went to school and had a blast. Since half the grade 4/5s were at Track Attack, the two classes joined together and had lots of outside, gym, and computer time.
Wednesday we headed to clinic for 9am. Access, bloodwork, pre-meds, platelet transfusion, de-access and home. As quick and straight forward as that sounds, it was 3 and 3/4 hours. Eric built more of the space coaster set for the play room. It is a huge set, but he's getting closer to finished. Unfortunately, no biopsy results because of the long weekend. Eric's bloodwork on Wednesday was not great though, which has me pretty worried about the results.
Thursday Eric went to school again and received a recognition at the monthly Recognition Assembly. He was recognized for his positive attitude. Nothing has ever been so fitting; this kid is unbelievably positive in the worst of circumstances.
Friday both kids woke up with a headache and stayed home from school. So frustrating for me as I ran all the errands on Thursday and was looking forward to my free Friday. Also concerning because Eric gets headaches with low hemoglobin. His last transfusion was less than 2 weeks ago and he's been getting about one a month, but with the bad bloodwork on Wednesday and waiting for biopsy results still, I start to think the worst. Luckily I was able to chat with our Nurse Clinician and she reassured me that Eric's Oncologist thinks things look about the same as last time. He is responsible for the inpatient ward this week and hasn't had time to call to review the results, but is on all weekend so said he would call us over the weekend. Of course the kids both felt fine by mid-afternoon. We made pizza for dinner and watched The Wild Robot for Friday family pizza night.
We are back to clinic Monday and Thursday next week, not Friday, since we're headed out of town for the weekend.
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