We woke up this morning after 3 nights spent in hospital. Eric immediately started building Lego and is on his 6th set since we got here. Thank you very much to the people who sent Lego to keep Eric entertained; it has been amazing. So far we've been able to stay off contact precautions (isolation) which is a huge win because it means we can get out of our room and Eric has been able to wander the halls looking for Pokémon. One of our amazing Child Life Specialists hid about 50 Pokémon stickers around the ward for Eric to find and then Eric hid some for me to find and when I found them all, he did it again, but harder! He is also spending his time tormenting the staff with his cockroach toy, which is super creepy and moves all on its own. He even left a vaguely threatening note to his night nurse the first night here to warn her.
Initially on starting the new cycle of IV chemo, Eric had some digestive distress, and then upon starting the new cycle of oral chemo, he had some nausea. However, it seems to have settled out relatively quickly and with some anti emetics to manage nausea, he's feeling pretty good. However, his dose of oral chemo will increase today, so we will see what happens next.
It looks like we might actually be able to go home tomorrow. I had assumed we'd be here for 7 days of IV chemo, but his doctor is actually only doing 5 days. However, he's also quadrupled the oral chemo dose, so I'm not counting on being able to go home tomorrow, depending on how Eric responds to the increase.
Luckily Eric was feeling well enough yesterday that we were able to get a day pass and Eric could attend a pizza and movie party at a friend's house in the afternoon. He was really looking forward to the party so it was nice that his doctor was able to make that happen.
Getting a pass yesterday also allowed me to make it home for my appointment for my flu and covid vaccines. Since Eric can't be vaccinated, it's really important that everyone around him is vaccinated in order to protect him. Chuck and Joel also got vaccinated yesterday.
We don't have the complete biopsy results yet, but hope that we will by his clinic appointment on Friday so his doctor can round out his plan for moving forward and discuss with us.
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