Bone Marrow Biopsy

Eric had his Bone Marrow Biopsy this morning. The worst part for him is the fasting. Usually the procedures start between 9:30 and 10am, but you never know how many people are on the list on any given day, or their ages, since they start with the youngest. Luckily, there were only 2 people on the list today and the other one was a teenager so Eric got to go first! The procedure went well and he woke up nicely. Upon waking he always wants a chocolate milk and then dug into the bag of snacks. 

His bloodwork today is showing his platelets are still low, and his hemoglobin, white blood cells and neutrophils are starting to fall as well. This is a sign of unhealthy marrow. There are blasts showing in the bloodwork as well, quite a low number, but any is not good. The results of the biopsy will come in over the week or so. 

I received a phone call from Eric's nurse clinician yesterday and she advised that his doctor wanted to start another cycle of 5Aza and Venetoclax immediately and he'd like Eric to be inpatient for it to keep an eye on his counts and how he responds. These are the 2 treatments Eric has been receiving off and on since January-ish. Eric will be admitted to hospital on Thursday for 7 days, 6 nights (and hopefully no more!) He is very pleased that he gets to go on his class skating field trip tomorrow morning before we have to go into hospital.

People always ask how they can help and that's such a hard question to answer. Generally just checking in on how we're doing is nice. Additionally, the hospital is a pretty expensive place to be as they only feed Eric, not the adult with him, and he doesn't like the food, so Door Dash and Starbucks gift cards are always welcome. Entertaining Eric for long days in the hospital is really important; he loves Lego and it keeps him entertained for hours at a time. Thank you to everyone who is thinking about and praying for him. 💕