Eric has been loving the snow! As previously reported, he got out sledding on Monday after clinic. Tuesday he spent most of the day in bed, but I guess he was just resting up for sledding in the afternoon! This is the snowboard he hurt his knee riding on Sunday, but he got right back on that horse. Thanks to Daimon for letting Eric give it a go!
Eric hasn't been feeling well enough for school this week. He tends to be quite tired and gets a very slow start in the mornings. He also has been a bit nauseous with some digestive discomfort on and off. However, he has actually feeling quite a bit better than I had anticipated, and better than he was feeling last week, particularly in the afternoons.
Now to the good news alluded to in the title. If you read Monday's update, you know that Eric's doctor had ordered extra bloodwork because he wanted an indication of how things were going with this new treatment at the half way mark. Monday morning Eric was exactly 2 weeks into the 4 week treatment. The dr called me Wednesday afternoon and I could tell from his voice that he was grinning from ear to ear. The bloodwork is showing a dramatic increase in donor cells and decrease in abnormal cells. He did give me the numbers but I won't share because it isn't a head to head comparison with the previous numbers since they were from a biopsy and this is from a blood draw. I will wait to share until we have the results of the next biopsy which will come at the end of this treatment cycle, now just over a week away. The news comes of course with a lot of caveats, and the doctor says we can be "cautiously optimistic." For me, I believe we have to take the good news where we can get it and this is good news; my heart is jumping for joy to know that it appears this treatment is working.
Finally, part two, Eric's second clinic day this week. It sure seemed like Monday was a long time ago. I was reminded of how much I prefer Friday appointments - the drive was easy, there was parking at the hospital and the clinic wasn't too busy. Our nurse came and accessed Eric's port quickly and easily. However, we had to wait quite awhile for the results of the bloodwork. Eric's Nurse Practitioner decided to go ahead and order platelets while we waited for the results, since he's needed them twice a week for a couple months now, and it can't hurt to top him up ahead of the weekend. The nurse started the pre-meds, but Eric was feeling really poorly, so when the pre-meds finished she ran Gravol for him as well, before starting the platelets. We did eventually find out that Eric's platelets were 27, which is by no means even close to normal; however, they are the highest Eric's platelets have been in 2 months. We made it out of the hospital and back home mid afternoon. Eric now has a giant Snoralax to nap on in the car and he made good use of it today. Thank you, Evan!
Unfortunately, after Eric was feeling ok all week, he seems to be feeling quite a bit worse today. Hopefully he'll wake up feeling better in the morning 🤞
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