Hard to believe the long weekend was only last weekend! On Friday I donated blood (have you donated blood recently???) and Chuck and the kids went to see the new Mario movie. Unfortunately, Eric had to come home about halfway through the movie due to the tummy problems he was having last week. Luckily, that turned out to be the last time he suffered from tummy problems. Saturday the Cops for Cancer were fundraising at Coquitlam Center with an 8 hour stationary ride so we stopped by to say hi.
Eric was also very happy to get poutine and an Orange Julius at the food court. We didn't stay at the mall very long at all though, because Eric has no neutrophils (germ fighting white blood cells) so its not really safe for him to be in crowds.
Sunday the kids had an easter egg hunt in the morning. Eric woke us up at 7:40 saying "there are eggs everywhere!" In the afternoon we went for Easter "linner" at Granny's with Uncle Dave, Auntie Jenny and Uncle Jay.
Monday Chuck had to go to work but Joel, Eric and I stayed home with Eric vowing to do nothing all day!
Tuesday Eric went to school and I was home alone!!! He made it most of the day, but did ask me to pick him up about an hour before the end of the day because he was really tired. That's the longest he's been at school in months.
Wednesday Eric and I headed back in to clinic. The site on Eric's chest from the miss last week is so badly bruised. It is quite a large bruise and the middle is about a quarter-sized purple/black splotch. Over the weekend, his port did slowly flatten again, but had moved further up his chest so it is above the bruise. I told him they could probably access it there, but he was having none of that. I put Emla in the same spot they did the peripheral IV last week hoping for the best and lucky they were able to do the PIV there. Eric's Oncologist looked at the bruise and Eric's unwillingness to try an access and said lets wait until next week. We will be back in on Monday, which will give the area more time to heal. He is going to ask one of the surgeons to come up and see Eric Monday so we can have a plan. Eric was annoyed to not have a plan that day because his port was bothering him. However, he really didn't want anyone to touch it and he was a bit cranky after not getting enough sleep the night before, so it was a bit hard to talk to him to make a plan. Due to the holiday, it was an extra day between Eric's appointments so no surprise that his platelets were <5. Normal is about 300. His hemoglobin is holding fairly well so far though, and his blast count is remaining fairly low. We were in and out of clinic fairly quickly which was nice as we've been having too many complications and long appointments lately.
Thursday Eric's class went to the zoo and we had it all planned so that I would drive only him, so he could come home early if he needed to and we'd rent the Critter Cruiser so he wouldn't have to walk around the whole zoo. Unfortunately, he woke up with a headache, which he'd actually been having the day before as well. I didn't think too much of it because it didn't seem to be too bad, until bedtime. His neck was also hurting after he'd napped in the car the day before. I had hoped I could give him some pain meds and we'd still make it to the zoo, but he really wasn't feeling up to it.
Eric doesn't go to school on Fridays, but he did have a meeting with his online teacher scheduled and we'd hoped to get a haircut. Unfortunately, he still wasn't feeling up to either. However, he did make it outside for a bit in the afternoon and said being outside felt really good.
Saturday morning, Chuck, Joel and I headed out for yardwork. Eric is not only not up for it, but is not allowed to play with/be around dirt due to a risk of fungal infection. He still came outside though and serenaded me with bubbles while I weeded.
Back to clinic Monday and Friday next week.
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