I think I jinxed Eric when I said he was feeling no pain in his toes. Since he was feeling good and it was a beautiful day, we went for a nice walk around Halfmoon Bay. I don't know if it was related or not, but later that afternoon/evening, Eric was in agony over his toes. He was screaming with pain. I gave him a pain killer, but it took a long time to work. It was pretty awful, but he did wake up the following day feeling much better and hasn't had that kind of pain since. We enjoyed a beautiful and lazy weekend on the Sunshine Coast. As lovely as it is, it's always nice to come home to our own beds.
Our week has been fairly uneventful. Tuesday Eric and I headed into clinic. Usually he would go on Monday for a platelet transfusion and with the extra day, plus the extra platelets needed for his toes, I was really worried he was going to have a bleed we wouldn't be able to stop. He'd had petechiae, which is a sign of low platelets, around his eyes and ears for days. Luckily, no bleeding and Eric got his platelet transfusion pretty quickly. Unfortunately, it was a tiny little bag of platelets, only 181 mls. They don't live that long, so not much point in giving 2 units, but his toes do need platelets to heal! We are back on Friday so hopefully getting 2 transfusions only 3 days apart will help. The appointment was quick. We saw Eric's Nurse Practitioner, but nothing to report. It was a pretty routine appointment.
Wednesday and Thursday Eric chose not to go to school because his toes are too sore to wear shoes at school all day.
Friday morning Eric's toes looked quite improved. His team had ordered an ECG so we left a few minutes early to sneak that in before his appointment at the Oncology Clinic. When we got to clinic we learned that his platelets were already ready! I don't know what happened that they are sending them without a platelet count this week when they wouldn't the last few months, but I am not asking, just hoping it continues! The platelet bag was a nice and juicy 289 mls which is much more normal. Eric's Oncologist and Nurse Practitioner came by for an exam and a chat, but not much to report. Everything seems pretty stable right now, but we're still hoping for improvement. Eric's NP confirmed his toes were less swollen and less red from when she'd seen them Tuesday. We were out pretty quickly since the platelets were ready early and got home a little after 1:30pm. Even with a quick day, I find the drive and the hospital exhausting, and passed out for a nap as soon as we got home.
Next week, Eric has a follow up with the Podiatrist on Tuesday and we're back in clinic on Wednesday.
Here's a pic of the boys on the ferry last week:
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