Hospital Days 7 & 8 / 9

Wednesday, Day 7: 

Eric finally had a good night sleep! Thank heaven; he really needed that. 

His doctor ordered the full/regular dosing of his treatment today. However, we didn't learn this until 9:15am when Eric absolutely refused to take the medicine because he isn't supposed to eat for 2 hours after. He usually takes it at 8am. His doctor said that was ok, that he could go back to full dosing the next day instead. 

Neuro left a pamphlet for me about migraines in kids. It includes some vitamins and minerals that are supposed to help prevent migraines. Eric's doctor has added those to Eric's daily meds, but apparently they take 2-3 months to work. 

Eric's doctor (pediatrician) also suggested that we leave the hospital on a day pass in order to test Eric's head in his normal day to day conditions. We decided to go home for the day. We got home about 1:15pm. Eric watched tv and built Lego, so the same thing he does at the hospital, but at home. We were able to eat dinner with Chuck and Joel and give Millie lots of cuddles. Unfortunately, it was only a day pass and we left about 7:15pm to go back to the hospital because we were supposed to be back by 8pm. It was really hard to leave; getting that little taste of home is almost harder than just being at the hospital full time. 

No headache for 3 days now!

Thursday, Day 8:

Another good sleep, yay! 

Back to full/regular dosing of treatment today 🤞

Doctor came in early this morning to give us the okay to go out on pass so we could have a longer day at home. Eric hasn't even finished his meds and I am still in my pjs drinking tea. The plan is to discharge Eric tomorrow if everything goes well today. Unfortunately, it looks like he'll need blood and platelet transfusions tomorrow before we can get out, so we won't be out until later in the day. 

This morning before the doctor came in, Eric finished the Lego set that was his prize for the MRI. It is a Ninjago set that transforms from a plane to a mech. 

He is excited to go home to work on the Lego set that he is building there - Hogsmeade Village - that he got for Christmas. He also dug out his Yu-Gi-Oh cards and is threatening to make me play with him tomorrow. 

While at home this afternoon I was able to make it to my blood donation appointment. It is hard to believe I didn't use to be able to find the time for this and yet I was able to go today with only an 8 hour pass from a week in the hospital. I was actually only out of the house for exactly one hour and I stopped to get gas on the way there and milk on the way home. 

We are back at the hospital for the night. 

4 days no headaches 🤞