Saturday, Day 3, was much better than the day before. No appointments or 'ologies to see and no headaches!!! Also, not a heck of a lot of light or movement which were triggering the headaches, but for now we'll be happy about no headaches. He played video games for the first half of the day and built a LEGO set for the rest of the day. He chose dinner from Boston Pizza for his favourite Bugs and Cheese and here he is enjoying it.
Unfortunately the night wasn't quite as good. Eric woke up sometime between 2 and 2:30 and could not get back to sleep. His legs were aching and nothing worked to stop it! It was 5:30 in the morning before he finally fell back asleep. His nurse came in at 8am to do his vitals, but then left us alone and we went back to sleep until almost 10am.
Sunday, Day 4, the morning was ok, but about 12:15, Eric pushed away his Lego, grabbed the back of his head and told me to close the blinds. We called his nurse to try and get ahead of the migraine, but it's just coming on too fast. It was only seconds later and he was screaming in pain. This time it was his stomach and legs too, as well as the head pain. His port was hep locked, so it took a few minutes to get the IV access, but at least the IV meds work faster. They're now giving him a "migraine cocktail" of meds to treat and it does work well. It took him a couple hours to recover; no longer in pain, but just to feel "normal" again. At least this med does seem to allow him to feel normal again, which I don't think was the case before.
The rest of the afternoon has been okay. Chuck came by for a visit and to bring us a few necessities, like a weighted blanket which I'm hoping will help with Eric's ache-y legs. We had a nice dinner and Eric is chilling with a video game, which doesn't seem relaxing to me, but I'm not a 10 year old boy. I finished the show I was watching earlier today, so I'm in the market for a new one and taking suggestions.
Fingers crossed for a better night tonight and a plan from Eric's Oncologist tomorrow.
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