I'm a little late updating on last week. I think I might still be recovering from our vacation.
We did make it back from our vacation without any further incidents. Though Eric and I did have a disagreement over what taking it easy on the tube looked like, of course! We had such a wonderful vacation and really didn't want to leave (thanks again D&R!) but we are also happy to be home. Heading to the hospital was a little rough on Tuesday morning. Eric didn't want to leave the house so early (9am). As he was putting on his shoes, he said he hadn't taken Cetirizine (Reactine) which he now takes before leaving the house for his platelet transfusions. That's when I realized that we'd also forgotten to put numbing cream on his port. We got both those things taken care of and headed out to the car when I realized that I didn't have car keys. I went back to the house to get the keys, got in the car, started it and began to back up when I realized I didn't have my driving glasses, so back to the house again. Eventually we did make it out of the driveway and all the way to the hospital.
Clinic had needed to open up on the holiday Monday, so it wasn't too busy on Tuesday, but it was sloooooow. We were there more than 2 hours before the platelets were even ordered and 3 before the transfusion started. No surprise that Eric's platelets were less than 5. His legs are still covered in bruises, but now he's also got a few nasty ones on his arms including a big fresh one on his shoulder and a huge one over one hip. He says that tubing was definitely worth it. Of course, he really only knows about the bruising and not the risk of internal bleeding. The Fellow gave him the once over and wasn't too worried. Eric does also have a skinned heel from trying to kick his brother and scraping his heel on the patio stones instead. The Fellow was mostly only worried about if he'd actually managed to kick his brother or not.
A local blueberry farm sells cases of blueberries at the hospital 2 days a week during blueberry season. I was able to buy a case of those and hold off grocery shopping, since Chuck had already popped out to get milk when we first got home.
We were back to clinic on Friday and one of the other T8 (that's the oncology floor) families were selling cherries and plums to fundraise for the hospital. I still hadn't been shopping, so definitely loaded up on those! Amazingly, Eric's super bad bruises from Tuesday actually looked slightly better. With only 4 days since his last transfusion, not 5, his platelets were 11 and luckily his hemoglobin was still 91. The clinic was super busy, but through a tag team of nurses, we got in and out of there in decent time.
We did restart Eric's oral treatment when we got back home on Monday night, so he only missed 4 days and, as of Friday, was on Day 19/28. I spoke with his doctor on Friday, but we're not going to add anything else in at this point. We'll just get through this round and the rest of summer break and then maybe add something in for the next round.
We're home for a few weeks now, except Joel who is at an overnight camp this week.
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