Eric was discharged yesterday morning - yay! His fever didn't come back after about noon on Wednesday when it first broke. The doctor we saw on the inpatient ward said that some people do get fevers with the common cold, which apparently was the only symptom that Eric had. Between that and the adrenal insufficiency it made for a pretty high fever, but luckily it only lasted 4 or 5 hours and then he was fine. Usually the procedure is to stay for monitoring 48 hours post fever, but the doctor wanted to keep us an extra day so she could wean Eric's stress steroid dose slowly to make sure he didn't rebound. However, when all the cultures were negative after 48 hours she discontinued the IV antibiotic so Eric was able to be disconnected from his IV and move around the room more freely. Unfortunately, we were still on contact precautions (isolation) so unable to use the shared spaces - microwave, coffee, tea, laundry, etc. Eric spent the entire hospital stay building Lego. The first set was a Dreamzzz set from his uncle that was over 1300 pieces. The second was a Star Wars set from Child Life at the hospital and was just over 1000 pieces. The Lego building made the time pass quickly. He doesn't generally love the hospital food, but this time he flat out refused to eat anything from there! Luckily we ate well thanks to some wonderful friends - thank you!
Eric was feeling well enough on Friday that they were able to go ahead with the bone marrow biopsy as planned. He had to fast for the biopsy and he was hilarious. He kept saying that his body was shutting down. I tried to high five him for something and he said his nerve endings were dead and he couldn't feel it. He started speaking gibberish and seeing things, like my pet penguin. It was all very goofy and entertaining. He wasn't cranky at all from his fast and he woke up really well from the anesthesia. The biopsy itself went well. Apparently the reason he was so sore after his last biopsy was because they had trouble getting the marrow, but they said it was easy this time. Now we just wait for the results which will inform next steps. There's no tried and tested procedure here and the doctor says maybe we can do this, maybe that, maybe, maybe, maybe...Frustrating, but Eric is in such a good place right now; we are so thankful for this option that has allowed him to feel so well.
We got home from the hospital at about 11am yesterday and I crashed on the couch all day, while Eric played outside for 5+ hours.
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